Connecting the celiac disease and food allergy/intolerance community together by sharing our stories to food freedom. From our beginning struggles to striving after a diagnosis, we can all relate and help each other out by sharing what weβve learned and our unique personal journeys.
Mistie so bravely reached out to me with her story a few weeks ago and again, I had tears in my eyes reading this raw story of just how severe, life threatening, and changing food allergies are. You know that May is Celiac Awareness Month, but this specific week in May (8th-14th) is Food Allergy Awareness Week. The food allergy story that Mistie has offered to share with us about her baby son Tanner, is so powerful (the images will have you in tears!). The horrifying and shocking night that changed her families life can only be described as a nightmare for any parent to wake-up to. You will not leave this blog post without a new realization for the seriousness of food allergies (if you don't already have one!). The story and photos are all courtesy of Mistie and she has allowed me to share them with you.
"My sonβs name is Tanner. He is 3 years old. We have no family history of food allergies. We were very unaware and oblivious when it came to understanding food allergies.
On December 9th, 2014, Tanner was 2 years old. We had received a Christmas goody tray full of different sweets from a friend that evening. I had placed the covered plate on the kitchen counter and went to get the kids tucked away in their beds. Tanner had just recently switched over to a toddler bed from a crib. In the early transition to a toddler bed, he might wake up and wander to our room in the middle of the night. That night he did wander, only he didnβt make it to our bedroom, he wandered into the kitchen.
Around midnight, as my husband and I were lying in bed, I heard a hacking cough. As a Mom, you often hear coughs and sneezes in the night. They donβt all make you get out of bed. This one did. This one made my Mom ears perk up. I got up to find the source of the hacking cough in the dark house. I first went to Tannerβs room and found it empty. Panic hadnβt set inβ¦just curiosity as to where he had made it to before he fell back asleep.
Then another hacking cough.
Panic slowly started creeping up. Where was he?! I started turning on lights now, quickly going through the house. Finally, I found him sitting in the kitchen, the plastic wrap on the goody tray partially open, and then my panic exploded.
He was sitting in front of me his face was splotchy, his hands were red and swollen. He was coughing, gagging, and drooling all at the same time. His nose was running and he was sneezing repeatedly.
In his hands he was holding a caramel cashew turtle that only had a few small bites gone.
As my brain tried to process what was going on, it took just a few minutes more before he started hiving and his face swelling. Now he was trying to vomit and choking. He was clawing at his face and chest, and was wheezing.
I yelled for my husband, and we called 911.
Fire, ambulance and police showed up. The ambulance gave him epinephrine and steroids on the way to the hospital. This is when we first heard the word 'anaphylaxis'. Thankfully, we reacted quick enough and made it to the hospital, because my son had what is called a 'biphasic anaphylactic' reaction. Which means he had a second reaction hours after the first, (without taking in any more of the allergen) his heart rate elevated, the reaction started all over again, and required additional doses of epinephrine.
This was all a shock to my husband and I. We have no family history of food allergies, and this is our youngest child. . . We were clueless. We literally Googled βfood allergiesβ, βanaphylaxisβ, βbiphasic anaphylacticβ while sitting in the ER.
Tanner spent two days in the hospital being observed, tested, and coming down from the swelling and hives.
His tests later showed that he is allergic to cashews. We avoid all tree nuts. (I even had to ask what were tree nuts and did they differ from peanuts. Which I would later find during advocacy is a very common question.)
During our learning process I discovered that eczema can be a sign of a food allergy or intolerance. Tanner has had very bad eczema since a newborn. Requiring prescription medicines, but food allergies, or even intolerances, were never mentioned.
We continued to see pop up reactions, not anaphylactic, but other reactions. I took him to his allergist and insisted there was something else. Possibly cats or dogs, through the process of elimination a cat or dog always seemed to be present when he had a reaction. However, my concerns were brushed away, a test (although easily done in a few minutes) was not administered. I then sought out a second opinion, and the test was run. Yes, Tanner is also very allergic to cats.
I have learned through this process, to trust my instincts. No, I am not medically trained. However, my husband and I are the only people on this planet who know our children better than anyone in every way. And that matters.
Tanner, sweet Tanner. Beyond learning his ABCβs and 1-2-3βs we also do flashcards to learn what different tree nuts look like. He has to learn which adults he can rely on to give him food. Every adult wants to help a sweet face toddler reaching for a cookie at a barbecue, but can he trust that this adult knows he has a severe allergy and has checked that food for him? He has been learning to carry his own small backpack with his EpiPens in it, and be responsible for it. Tree nuts are one of the four top 8 allergens that tend to be lifelong. Also, teenagers and young adults with food allergies are at the highest risk of fatal food-induced anaphylaxis. Instilling these simple habits in him early, I hope will make for easy transitions into upcoming school years, and stick with him lifelong. Β
Truthfully, food allergies donβt rule my sonβs life. Yes, there are things he cannot have and we have to be on guard for his allergens. Yes, he has to learn self-responsibility a bit different than other children. However, we cannot remove his allergens from the world. Many people have personal struggles that they have to triumph every single day. Thankfully, his is very manageable."
I told you this was a powerful one! But look how Mistie has cared for Tanner and turned this new life into something they can life with. I love the flashcard idea she uses and how she is teaching Tanner, at such a young age, the important knowledge he needs to take care of himself as well. It's so important to prepare your children as quickly and effectively as possible about their allergies. Mistie is also very involved in her local FARE chapter (find your local support group here!) and she also happens to be a blogger (not related to food allergies).
Mistie hopes that by sharing her son's story that you learn to trust your instincts as a parent and do everything possible to find the answers you need and keep your family safe as best you can. Thank you SO much Mistie!
So tell me:
+ Are you a member of any local allergy support groups?
+ Any questions for Mistie and Tanner?
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Anya
What a story! So glad that Tanner is doing well now.
Rebecca @ Strength and Sunshine
Isn't he just such a sweetheart!? So scary!
Emily @ Recipes to Nourish
Wow so glad she's talking about their experience. So glad they were able to find out what his allergy is.
Rebecca @ Strength and Sunshine
And the vigilance only begins now.
Deborah Davis
Reading Mistie's valuable and insightful story was incredibly eye-opening! I applaud her wise approach to preparing Tanner for a full rich life by helping him learn to take responsibility for his health and safety at an early age.
Rebecca @ Strength and Sunshine
Yes, thanks Deb!
Kathleen - Bloggers Lifestyle
Thanks for bringing Tanner's story. What a frightening night that would have been and now to be careful and watchful every day. It is good to read these stories that help to educate us as well, to be more aware of food allergies. Also not to be afraid to seek a second opinion.
Rebecca @ Strength and Sunshine
Thanks for reading, Kathleen.
Marla
HI Rebecca,
What a inspirational story. Many do not realize the seriousness of food allergies and sensitivities. Pinned & tweeted!
Rebecca @ Strength and Sunshine
No, they do not!
Sarah
I'm happy Tanner's story had a happy ending. Kudos to his parents for being so responsive and forward thinking with educating Tanner about his health care. I taught elementary school for 30 years, and several of my students through the years had severe food allergies. It is so important for children to be aware and informed when away from their parents. Thanks for sharing this story.
Rebecca @ Strength and Sunshine
It is! No matter the age, you need to be able to advocate for your own health as best you can!
Kristy @ Southern In Law
These photos broke my heart - but it's exactly why allergy awareness is SO important!
Rebecca @ Strength and Sunshine
I these types of images are what people need to see!
Hannah @Sunshine and Spoons
So scary! I'm so glad they found out what he's allergic to so he can avoid his triggers.
Since I was 6 years old, I've had random anaphylactic episodes with no discernable cause. I'm 30 now and we still haven't figure it out. I
Rebecca @ Strength and Sunshine
Really? Goodness, that's terrible!
Wendy
As an adult with a life long allergy to tree nuts, I can truly empathize! Eating out and travel can pose extra concerns. After decades of dealing with this, there are still new situations where I am at risk. I would like to share that it is SO important to inform the server at a restaurant about food allergies, even if you think the item you are ordering is of no concern. We recently ate at a restaurant that cooks all of it's pasta in the same vat of water....INCLUDING their pistachio ravioli! My plain pasta would have been contaminated and I would have had a severe reaction had the server not been informed! An ounce of prevention.... I am so glad Tanner is doing so well!
Rebecca @ Strength and Sunshine
Yes, yes! That's why I really don't feel safe eating out and rarely ever do. Bringing my own food just has to happen and I'm not embarrassed by it...it's for my safety and health.
Thank you Wendy <3
Michelle
I wish more people were aware of the dangers of food allergies. Although we don't have (severe) allergies in our family, I know many who do, and the apathy and sometimes outright denial they face by others is alarming. Especially when it comes to school-aged children.
Thank you for sharing this story.
Rebecca @ Strength and Sunshine
Yes, there is so much traction. We just need to keep advocating for our safety. Everyone deserves to feel safe and not on high alert at every turn!
Lady Lilith
This can be scary. Gowing up I had bad allergies, my siblings has bad allergies and it keeps going on. As long as you know what to look for, living with allergies is pretty managable.
Rebecca @ Strength and Sunshine
Yes. It's that first unexpected episode that can be devastating!
Victoria @DazzleWhileFrazzled
Fortunately, my children (so far) don't have food allergies and I admit there's a lot I don't understand. But it's stories like this that are a good education for those of us who don't deal with these challenges.
Rebecca @ Strength and Sunshine
Yes, I hope these can let everyone see just a bit more how serious they are.
Mary
I had no idea May is Celiac Awareness Month, thank you for sharing this heart-wrenching story, it made me cry but it was very informative.
Rebecca @ Strength and Sunshine
Thanks Mary.
Laurie
Wow! This brought back a flood of memories. Our oldest daughter (now 25years old) no allergies. Our son who is now 21 years old and days away from graduating college! From birth on had severe, anaphylactic food allergies, to many things. Some he did outgrow, some he still deals with. But as a proud parent of a wonderful young son. Know in part that he has become the outgoing, capable, compassionate person...inspite of the the overwhelming challenge of food allergies.
Tanner has wonderful parents who have already figured out the most inportant thing!! Trust your heart and your gut. You will need to be his biggest advocate! Wheather with family, school or medical. The balance of letting him be a kid with new opportunities, experiences while keeping him safe will be tough, no doubt. But know that it is all going to be fine! Enjoy the journey! Your whole family and Tanner will be stronger and more loving because of the challenges ahead! Love, Alex's Mom!
Rebecca @ Strength and Sunshine
Yes, Laurie. We can't be scared of life or let our allergies rule us Once we know how to stay safe and advocate we can make things so much better for everyone!
Robyn @ Simply Fresh Dinners
So great that Mistie reached out to share her story with you, Rebecca. And Tanner is such a sweet, brave little boy! Thanks for the education today. We all need to be more aware.
Rebecca @ Strength and Sunshine
Yea, it's stories like these that can really hit it home!
Kristina @ Ms.Modify
Aww poor little guy! Food allergies are so scary!
Rebecca @ Strength and Sunshine
It's terrible when they have to go through this so young.
Maria
Scary stuff! Thank you for sharing this article and increasing the awareness of the seriousness of food allergies. Also a food reminder to go with your gut and trust your instincts!
Rebecca @ Strength and Sunshine
Yes! Thank you for reading, Maria!
Olena @ candiesandcrunches
Poor little munchkin!
Rebecca @ Strength and Sunshine
He's a trooper!